To Ipswich on Saturday 27th June, 2015 with the Juvenile Diabetes Research Foundation (JDRF).
A Type 1 Discovery Day.
JDRF, as a registered charity No: 295716, delivered a day of great science and support to parents, carers and children whose lives have been touched by Type 1 Diabetes.
The event was held in the Waterfront Building at UCS in Ipswich, with the visitors able to get to understand Type 1 better, but also to meet the enthusiastic, caring and knowledgeable team from JDRF.
The younger children were catered for in a separate area of the University, just down the corridor in an adjacent room. They were entertained, energised and informed by the team from Mad Science. A great way, in a superb learning setting, to free parents and carers to concentrate on the business of the day in the University auditorium. (A great idea we thought – Ed.)
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Keynote speakers on the day:
Dr. Martin Tauschmann of Addenbrookes Hospital was in attendance to give the audience up to date news and information on the Artificial Pancreas Project.
A key part of Dr. Tauschmann’s exposition was that ‘…the closed loop is on its way’. He went on to illustrate the changes in technology and equipment which has, in very short time revolutionised both take up and delivery of insulin to patients in an automatic or semi-automatic fashion.
Five years of intense clinical research has resulted in test equipment which makes decisions for the patient every 12 minutes, adapting and measuring doseage to suit the persons ongoing status.
Research, like that funded across the JDRF spectrum of activity has several aims. They are ‘…to achieve, for the person concerned, reassurance, peace of mind, confidence, safety, better control and the ability to feel much better in the first half of the day’.
Dr. Tauschmann stressed how important funding from JDRF was, given the long lead times from pure research to delivery of a finished product, in terms of new pumps and e-control mechanisms for them. Each study taking some five months to appraise, with another six to twelve months for completion and publication.
(It was at this point we wanted a representative of the Google Foundation, the Android development team or Apple, to burst into the auditorium to announce a new development partnership with Addenbrookes and JDRF. Using smartphone technology and manufacturing expertise to help close the loop very quickly indeed…Ed?).
John Hassler-Hurst and Dr. Gerry Rayman of the Ipswich Diabetes Research Team at Ipswich Hosital gave an informative and well illustrated talk on the depth of research, innovatory approaches and inclusions to practice of a national nature which had all been fostered at Ipswich hospital.
In 1985 the Ipswich team were the first to attempt to discover if a dedicated Centre for Diabetes had utility as a resource. A self evident truth held by all now. The team at Ipswich are part of a research energy which exceeds any other District General Hospital in the UK.
They have broken ground in several key areas of care and research we were told. ‘In technology, education, kidney function and eye disease’.
Jahn Hassler-Hunt, the lead Paediatric Research Nurse for the Ipswich team completed the presentation by giving the audience a very detailed analysis of the most recent and current research areas.
From the effect of Interleukin 2, to the enhanced clinical outcomes which can now be expected, how very young children can be included in research methodologies and how Centres, such as Ipswich, can offer seamless access to research and care provision right through to adulthood. A very important part of process for children and young people on their health journey.
The event was rounded off by a JDRF volunteer, Kevin Black, who is a public speaker of some proficiency and humour. Kevin gave us details of not only his own contribution to the work of JDRF and how this has supported his own family, but also illustrated forthcoming JDRF events which everyone can take part in. (We offer details of some below…) We enjoyed his talk and it left us uplifted.
Forthcoming JDRF events:
London Bridges – One Walk Sunday 27th September, 2015. See more here…
Cambridge Coffee Morning Girton College Friday 2nd October 2015 at 10.30am See more details here…
This was a stimulating and informative event, for those attending and those with an interest in finding out more about how to support the work of JDRF.
If you have someone in your life touched by Type 1 then getting involved with the charity as a volunteer or a donor is a great way to support the work, the research and quality outcomes for children and young people.
You can make contact with JDRF in the East of England here on their web pages.
You can donate on-line anytime here.
